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Exercise Your Brain - Go Back to School

I was a pretty good student in high school and college, but I had one failure in my senior year of high school. I had to drop out of Introduction to Calculus. Somehow I got my Bachelor's degree and an MBA without it, but that had always bothered me. I recently found a truly amazing site to go back to school and try calculus again.

I Won a Race - Sort of

Those who have read my story may recall that I'm one of 4 people who have finished all the Marine Corps Marathons in Washington, DC, starting in 1976. I'm the youngster of the group at 66. The others are 70, 72 and 74. The 37th race was last Sunday and we all finished, but not in our usual order. Traditionally, the oldest guy, who has fast genes, finished well ahead of the rest of us. I was usually second behind him. The race has nicknamed us the Groundpounders, a play on the slang for a Marine infantryman.

False Memories

Delusions can be a big part of Huntingtons with some people.  I have a sister who is completely delusional.  It really keeps us on our toes to try to keep up with all the different ideas she comes up with.  Trying to reason all the time with someone who has an altered grasp of reality and a 5 second memory span is a full time dance/job.  She keeps coming up with these brilliant ideas but because she does not see her disability at all she feels she is capable of everything and everything.

Needing an Advocate

The time will come for each and everyone of us when we will need someone else to do our talking for us. A few months ago there was something that happened that made it clear I had gone from needing a part time advocate to a full time advocate. I relocated again last winter and had to go through the process of getting a new dentist and family doctor. I have run into problems in the past with dentists as they do not understand that I have to be medicated for them to be able to work on me.

The Effects of Huntington's

Having HD can and does make my life extremely complicated. Everyday things that can come easily to other people can become a huge struggle for us. Sometimes I feel like I am somewhat of a ticking time bomb because I have done incredibly well to make it as many years as I have with this disease. I know without a doubt that I am on borrowed time right now. The need to make every single day count before I progress too far is ever present. The fact that I am very easily confused add a lot

Early Pre-Huntington's Symptoms?

The question of when “onset” occurs has always been a hard one to answer. People in HD families have known for many years that their loved ones' deterioration with HD occurred years before the doctors would or could diagnose it. Our HD does not become real to the medical world until the day we are diagnosed as symptomatic. In the meanwhile we can feel like we are going crazy because we know something is seriously wrong inside of us deep inside but it can be invisible to others. I

Family

Huntington’s Disease is a whole family affair. There is not a single member of any HD family out there who is not affected in some way by their HD family member(s). There are many sad stories, but there are just as many people out there who are fighting their own HD dragon with a bravery that makes their family and friends proud. %TR% My oldest sister is one of those HD heroes I speak of. Each time I see her she has declined further into her own HD journey. She is a window into my futu

A Matter of Perception

We have all heard the saying that life is what you make it but many people do not realize that the way they perceive things plays a major role. I read a story once about a man who decided to test his young niece with the half glass of water to see if she was an optimist or a pessimist. The Uncle set the glass in front of her and asked if it was half empty or half full? The girl answered that it would depend on whether you were pouring it (half full) or drinking it (half empty). And with that sa

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