Welcome to the community section of HDLF.org. This section is intended to help guide you through the wealth of information available on the Internet for families affected by Huntington disease.
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It was a strange feeling going to the JHD weekend this year. My son Michael and his friend Bobby had both passed away and it was a different venue; how could it be as good? Jamie (who had been one of Michael's carers), my daughter Kirsty and I, left Girvan at 1:30 pm for the the 150 mile journey. We had hoped to be at the Calvert Trust in England by 4:00 pm. We had the satellite navigation system so getting there should not have been a problem. Unfortunately, 'shouldn't' and 'wouldn't'
Confirming a diagnosis The development of the DNA test has been very useful for confirming a diagnosis of Huntington’s Disease that a physician may make based on clinical signs. The DNA testing is especially helpful for those with earlier or later than average onset as well as when someone develops HD without a family history. A Canadian study reported that a quarter of those who tested positive were unaware of any family history of Huntington’s Disease. The reasons for this wer