Since April 2000 the mission of the HDLighthouse Families Web site is to present and explain the latest research findings so that families afflicted by Huntington's disease can become proactive in their care, have hope for the future, and make good decisions in the present. Additionally we provide information that is vital to the the support of HD families. Where possible we will direct you to specialists in the your area of concern, but if we are able to provide better or more current information then you'll find it here.

To Live 'As If' - My Story<br>Chapter V: The First Year is the Hardest

If you have not gathered by now, dear readers, the fact that I am so far from saintly (as I have been depicted in my other writings about my sister?s battle with HD), I suppose this next installment of my story, the first year that I lived with HD, will strip me naked and expose the real ?me?. Toward the end of 1995, we were aligning, taking positions within the immediate family, where my sister was concerned. With three children, plus one grandchild in my care, my position carried weight, I


Some people say that denial is the minds way of putting off until tomorrow what it hurts too much to admit today. I believe that. It is like a built in self-defence mechanism that kicks in when you can not deal with something emotionally. Everyone deals with things in their own way and at a different rate of speed. There is no guidebook to tell us how long it will take us to come to terms with something, or what is an appropriate form of grieveing. But the official five stages of grief are--

More about autophagy

Autophagy within the cell is relevant both to the disease process and the design of treatments for Huntington's. New work is adding to scientists' knowledge.

Why people with HD sleep more

Huntington's Disease causes the same kind of cell death in the hypothalmus that is found in narcolepsy. This explains the excessive sleeping of people with Huntington's Disease.
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