Since April 2000 the mission of the HDLighthouse Families Web site is to present and explain the latest research findings so that families afflicted by Huntington's disease can become proactive in their care, have hope for the future, and make good decisions in the present. Additionally we provide information that is vital to the the support of HD families. Where possible we will direct you to specialists in the your area of concern, but if we are able to provide better or more current information then you'll find it here.
After years of wondering just what my "problem" was, I do admit that I am relieved that my problem finally has a name. I have always been very different from others and had a really hard time fitting in with those people around me. And I knew many years ago that there was something wrong with me because of my very odd feelings and behaviors. My "quirks" if you will. Imagine my surprise to see each one of my unexplained quirks listed under the emotional and cognitive symptoms of Huntington's w
Taking care of a loved one with Huntington's Disease is never easy no matter whether it is a parent, a spouse, a child, or a friend. All along the journey there are triumphs and grace periods and lots of love, but there are also losses to be grieved. We lose our plans for the future, we watch our loved ones lose the ability to do things that once came naturally, and often we appear to lose the people they once were as the disease takes over. And sadly, we may be caring for more than one perso