Since April 2000 the mission of the HDLighthouse Families Web site is to present and explain the latest research findings so that families afflicted by Huntington's disease can become proactive in their care, have hope for the future, and make good decisions in the present. Additionally we provide information that is vital to the the support of HD families. Where possible we will direct you to specialists in the your area of concern, but if we are able to provide better or more current information then you'll find it here.
Every two years the Hereditary Disease Foundation (HDF) has a conference that showcases research and researchers supported by HDF. Many of these same efforts are also funded by HDSA and High Q. Ear
Two Phase II trials with minocycline have ended and both found minocycline to be safe and tolerated by Huntington's Disease patients.
I?m feeling very hopeful about the future of treatments and a cure for HD. With all the changes since I last wrote about Hope, it seems like a good time to write a new article about reasons for hope. I?m excited about: new advancements in RNA interference therapy the convergence between HD and cancer research new basic knowledge about the Huntington?s Disease protein To prepare, I turned to the article I wrote in 2000. I had some trepidation thinking that time might have made it o
The study referred to in the press release is a dramatically different view of what goes wrong in the HD cell than is found in traditional HD research. The traditional view is that the HD protein,
Recently we noted the lack of clinical trials for medications to treat HD symptoms. Neuroleptics or antipsychotic drugs are frequently prescribed for the psychiatric symptoms of patients with HD and
The antibiotic rapamycin is being researched as a potential treatment for Huntington?s Disease. Rapamycin has had good results in a cell, fruit fly and mouse model. Since the results from the cell m
While we are all grateful for the research into potential treatments for Huntington?s Disease, in the meantime research into treatments of the symptoms has lagged behind. This is why it?s so importan
The major conclusion of this study will come as no surprise to longtime readers of the Lighthouse. It is news, however, that the HD protein causes abnormalities but not dysfunctions in cells in the sk
Scientists have found a way of successfully treating flies that were given human degenerative brain diseases.
The HD Drug Works program is off to a good start. Over the past month, the first wave of HDDW participants fired up their computers, logged on with unique identifiers, and tapped. And so began baselin