Since April 2000 the mission of the HDLighthouse Families Web site is to present and explain the latest research findings so that families afflicted by Huntington's disease can become proactive in their care, have hope for the future, and make good decisions in the present. Additionally we provide information that is vital to the the support of HD families. Where possible we will direct you to specialists in the your area of concern, but if we are able to provide better or more current information then you'll find it here.

World Congress on Huntington's Disease

WORLD CONGRESS ON HUNTINGTON’S DISEASE September 12 – 15, 2009 The Westin Bayshore, VANCOUVER, BC Huntington’s disease (HD) researchers, clinicians, and members of the HD community from around the world are invited to participate in this unique meeting. The scientific program features presentations on recent advances in genetics and disease mechanisms of HD, recent approaches to developing experimental treatments, and the latest findings from clinical trials. The Congres
The Division of Continuing Professional Development at the University of British Columbia

A Special Gift: The Rose

I Am A Rose %CRY% I'm 51 years old, and five years ago I was diagnosed as being in the early stages of Huntington's Disease. This was not an easy time for me. I was dealing with both the practical loss of not being able to do everything I have always been able to do, but also dealing with emotional grief as well, because I was going through a true grieving experience, grieving the loss of me. It was a scary time as well, feeling that the future was scary. My grief was very real, as it should h

Barb Marshall

A Day on Capitol Hill

We signed up to be HDSA’s advocates a few years ago. We sent in our letters to elected officials some of the time when we would receive our HDSA advocacy alert emails. We recruited friends and family to contact their legislators regarding GINA (Genetic Nondiscrimination Act) and were delighted when it finally passed. When the HDSA advocacy team made H.R. 678, the Huntington’s Disease Parity of Act of 2009 a priority last year (original name, but H.R. 6259 in 110th Congress), w

Tim and Karen O'Neil
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