Since April 2000 the mission of the HDLighthouse Families Web site is to present and explain the latest research findings so that families afflicted by Huntington's disease can become proactive in their care, have hope for the future, and make good decisions in the present. Additionally we provide information that is vital to the the support of HD families. Where possible we will direct you to specialists in the your area of concern, but if we are able to provide better or more current information then you'll find it here.

A Day in the Life, an HD Experience, Charlotseville, VA, April 18th

UVA’s HDSA Center of Excellence will host their annual conference on Saturday, April 18 at Zehmer Hall Conference Center on the University of Virginia campus in Charlottesville, VA. The conference will run from 8:30am to 4:00pm. Featured speakers will include Katie Moser, Madaline Harrison, M.D., and Sue Drumm, J.D. The conference is cosponsored by the UVA HD program and the Washington D.C. Metro Area Chapter of the HDSA. There is generally a small fee to attend the program which inc
Tim O'Neil

Confronting Fate

written April 1998 I had grown up with the knowledge that Huntington’s Disease ran in my Father’s family. It was never a secret. My parents divorced when I was three. I did not see my Father again until I was nineteen. I was raised by my Mother and new Dad. Thousands of miles away from my Father, two older sisters, and the effects of Huntington’s Disease. The word held little meaning in my life until recently. When I was a child I was told HD was something I would neve

A Long Time Ago

We wanted to know. It was 1991. If Karen’s Huntington’s Disease gene linkage test was positive, we would plan our life together accordingly. If the test was negative, we would be relieved and plan our life together as any other twenty-something couple. We met in the mid 1980s and were married in 1989. Karen’s paternal grandmother passed away from Huntington’s Disease (HD) a few weeks after we met. Karen told Tim about her grandmother’s disease at that time a
Tim and Karen

HDSA Center of Excellence at UCLA presents the Hope and Cope conference

The HDSA Center of Excellence at UCLA presents: HOPE AND COPE: Living with HD while working towards a cure, an educational symposium for patients and families living with HD. Featured presenters will include: Dr. Susan Perlman, Dr. Yvette Bordelon, and Alice Wexler, author of “The Woman who Walked into the Sea.” In conjunction with the HDSA-LA Annual Membership Meeting Sunday, February 8, 2009 10:00 am – 3:00 pm The meeting will take place on the UCLA campus
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