Once we are settled down in to some semblance of a support network then many times we can find the energy to do something about Huntington's disease.
Often this takes the form of fund-raising for the purpose of supporting a local HD group, HDSA chapter, or supporting HD research. But it can also lead you to political advocacy.
If you are reading this then you might be looking for more information about one of these and I hope that I can get you off to a good start.
Political advocacy is all about lobbying your Congressmen and Senators to support legislation that helps HD families.
Personal advocacy is all about making sure that all of the pieces needed to keep a family affected by Huntington's disease running smoothly and able to respond to problems quickly and appropriately - and there are a lot of problems.