HD Family Life

The Many Challenges of HD

There are so many different challenges involved in living with Huntington's Disease. The trick is to try to look at our journey as a quest rather than a curse. This is not an easy thing to do. Being thankful for the symptoms you do not have is a lot easier than accepting the symptoms you do have. But doing both is paramount to surviving living with HD. Having HD is like being a player piano, you are living to the music, but you did not pick the song. Something else is at the control hitting p

Swimming against the Tide

The topics that are covered in this article are only my experience and in no way a guide or a criticism of how others think. When caring for someone with JHD we encounter many problems; one of the biggest is trying to be understood. We try our hardest to explain our situations to doctors, nurses, social workers etc.... but often we are thought to be exaggerating or even bending the truth a bit. Sometimes its like banging our heads off a brick wall. Not only do we have to care for our loved on
Gordon Robertson

Educational Seminar: Caregiving in Hungtington's Disease, Toledo, OH

%TR% Huntington’s Disease Society of America Central Ohio Chapter - Toledo Area Support Group proudly presents: “Caregiving in Huntington’s Disease” with HD caregiving expert Jim Pollard Director of Huntington’s Disease Services Tewksbury Hospital, Tewksbury, MA A daylong educational seminar on caring for those affected by Huntington’s Disease. This program is designed for both family caregivers and health care professionals. Please plan
Robin
robin@purkeyins.com

Death and Dying

I have made alot of different realizations in these two months following my Mother's death in January. How we all start out as children with a base of family members that become our background environment and the family that we grew up with. We take our family and extended families for granted for many years. It just does not register when you are young that as you grow up you will lose these family members one at a time until there are only a few standing. I will be turning 40 this year and

Long Journey Home

It was early August 2000, a lovely Summers day in Scotland (rare). Michael and I were going to Yorkhill hospital. He had been having problems -- falling, deteriorating motor skills, bad muscle tone; something wasn't quite right, I didn't know what. We were to meet a neurologist, an expert of 'the brain.' I knew very little about all of this. I suppose I was a bit 'ignorant'. Little did I know that two hours later our lives would change forever. As we walked into the neuro's office, he watched
Gordon Robertson

I Hate this Disease, but I Love Him

Today is our 46th wedding anniversary. As I sit here, I remember a special young man, cute, warm hearted, with a sense of humor that wouldn’t quit. He was smart, articulate and sexy, not like any other guy I had ever met before. I was madly in love and felt like the smartest girl in the world because he loved me back and we were getting married. We bought a house a few months later and settled down in the suburbs. He was still finishing college and I was working full time. We discovered
Marg

Progression

Although Huntington's disease progresses slowly, sadly it does progress over time. Everyone who has HD is in a constant state of change between developing new symptoms, and the increased strength of the symptoms already there. People are so very different here. Some have a handful of symptoms that are strong, some have a lot more of the symptoms but they are hardly noticeable now. I have always said that with HD time is on your side as the progression is slow. And compared to cancer and other

David's Gift

It was five days before Christmas and I was feeling pretty sorry for myself. I wasn't even 50 years old yet, but my husband, David, was living in a nursing home full time with a progressive, degenerative neurological illness. My oldest son had married over the summer and the youngest one had started college in the fall; both were fairly self-sufficient and rarely were around. Also, I had not worked since August, so I was missing the day-to-day interaction with co-workers and the daily challenge

Renee Underwood

Help for Huntington's

One man’s struggle gives him strength for others Ken Randall knew something was wrong when his arms and legs would shake at night. After a series of tests, doctors diagnosed him with a genetic brain disorder called Huntington’s disease. That was about five years ago. Now the 78-year-old Loveland man wants to raise awareness of the condition and help other people in the area who may have it. “After five years, I’d say I’m doing pretty good,” he sa
Ann Depperschmidt

HD, eHarmony, and Me

I?m sure you have all heard the eHarmony adds on TV. I decided to try it since I had obviously missed something with my last committed relationship when I found out January 1, 2006 that her sole New Years resolution was to ask me to leave. I figured if anyone needed extra help it was me since I was totally blindsided by her New Years edict. I followed the TV commercial, logged onto the eharmony.com website, paid for only a month, and registered. I only paid for one month because I was afra
Phil Hardt
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