Fund Raising & Awareness

World Congress on Huntington's Disease

WORLD CONGRESS ON HUNTINGTON’S DISEASE September 12 – 15, 2009 The Westin Bayshore, VANCOUVER, BC Huntington’s disease (HD) researchers, clinicians, and members of the HD community from around the world are invited to participate in this unique meeting. The scientific program features presentations on recent advances in genetics and disease mechanisms of HD, recent approaches to developing experimental treatments, and the latest findings from clinical trials. The Congres
The Division of Continuing Professional Development at the University of British Columbia

A Day in the Life, an HD Experience, Charlotseville, VA, April 18th

UVA’s HDSA Center of Excellence will host their annual conference on Saturday, April 18 at Zehmer Hall Conference Center on the University of Virginia campus in Charlottesville, VA. The conference will run from 8:30am to 4:00pm. Featured speakers will include Katie Moser, Madaline Harrison, M.D., and Sue Drumm, J.D. The conference is cosponsored by the UVA HD program and the Washington D.C. Metro Area Chapter of the HDSA. There is generally a small fee to attend the program which inc
Tim O'Neil
toneil@pediatricassociatespc.com

HDSA Center of Excellence at UCLA presents the Hope and Cope conference

The HDSA Center of Excellence at UCLA presents: HOPE AND COPE: Living with HD while working towards a cure, an educational symposium for patients and families living with HD. Featured presenters will include: Dr. Susan Perlman, Dr. Yvette Bordelon, and Alice Wexler, author of “The Woman who Walked into the Sea.” In conjunction with the HDSA-LA Annual Membership Meeting Sunday, February 8, 2009 10:00 am – 3:00 pm The meeting will take place on the UCLA campus
HDSA COE at UCLA

The HSC National Conference 2008

Why Attend? Join us in Charlottetown at the Delta Prince Edward for an inspiring, energizing and information-packed three days. It promises to be the best HD conference in North America this year! Our Saturday program features not just one keynote address, but an entire day of world-renowned HD speakers. Get the most up-to-date information on drug developments and research discoveries, the latest insights into maximizing quality of life, and a personal, impassioned view of what
Wayne Greenway
mailto:wgreenway@huntingtonsociety.ca

The 2008 HDSA Convention

Steve and I attended the HDSA convention, which was held in Pittsburgh, Pennsylvania from June 5-8, 2008. It was one of the more lively conventions with good news on the research front, activities for everyone, good turnout from a growing and active National Youth Alliance, and friendships made and renewed. The convention officially opened on Friday, June 6th, but we were there on Thursday so I could speak to the chapter leaders about the new HDSA website. I have the responsibility for the
Marsha L. Miller, Ph.D.
Marsha@hdlighthouse.org

Patient Power series on Huntington's Disease starting June 2nd

I wanted to make you aware of an upcoming webcast series by the health advocacy program, Patient Power, discussing Huntington’s Disease with medical experts in the field. The shows will air live at noon Central Time Monday, June 2nd through Wednesday, June 4th, at http://www.patientpower.info. Listeners may call in with their questions for the featured doctors live or e-mail questions ahead of time. I know your members would gain valuable information from the show, and I sincerely hope
Steve Ireland
stevei@hdac.org

8th Annual Garbage Trail Walk to Massacree HD on May 18th in Stockbridge, MA

Hi! Sunday, May 18th is the date for the 8th Annual Garbage Trail Walk to Massacree HD in Housatonic and Stockbridge in Western Massachusetts. The Walk is a 6.6-mile route of sites made (in)famous in Arlo's classic "Alice's Restaurant Massacree" including the old Stockbridge Town Dump that was "Closed on Thanksgivin'" and the site of the Stockbridge Jail where Officer Obie arrested Arlo. It begins at the Guthrie Center, site of the 1965 "Thanksgivin' Dinner That Couldn't Be Beat" and ends
Jim Pollard
jjpollard@comcast.net

Dine for Huntington's Disease in Elgin Texas on April 25th

Nancy Hutchison’s Chicken Fried Steak Dinner $10.00 per person (adults and children) Friday, April 25, 2008 5:00 pm – 8:00 pm (Dine in or take out) FUMC Elgin Fellowship Hall *extra desserts will be available for purchase “Help us help someone else” Make checks payable to: Huntington’s Disease Society of America This event is being hosted by the FUMC Elgin Kitchen Ministry Team. Our own Deborah Harden was diagnosed in April, 2006 with Huntington&#82
Steve Ireland
stevei@hdac.org
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